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The Celle Seminars_Page 207

Celle Seminar I, Case 7: Fabry-Anderson Syndrome

LIVE

(G.V.): The previous question was aimed at trying to find out about his relationships with women. I’d like to see if he volunteers any information. There must be some limitations on his relationship to women because of his disease.

VIDEO

(M.P.): …that I would have liked to do, it was because of my weight and because I did not have the strength to do it. For example, I could not go out with other people to play squash or go running or whatever. There are other limitations on going out, like going to the Oktoberfest or to bars, or drinking beers. (G. V.): Would you like to do that?
(M.P.): Yes. I do go out now. I think my friends got used to my habits, to my limits, that I can’t drink alcoholic drinks or go skiing in the winter time with them. We get along really well because they accept it. But it hasn’t always been that way. Sometimes when people would not accept my limitations, when they looked down upon me because I did not want to go skiing, I just didn’t tell them about my disease. Instead, I pretended that I just don’t like to ski. I guess I was kind of pressured from the outside. That really had an effect on me before, but now I really get along with them. I got used to it and they got used to me. Except for my thinness, you’d hardly notice my illness. I can do a lot of things, even some sports, like playing ping-pong or, if I’m feeling well, I can go out hiking. I get along with that. My limitations are mostly socially, being together with others. There was an age between fourteen and seventeen when everybody was playing soccer and I couldn’t join in. (G. V): What about friendships, girls and things like that? (M.R): Yes, that was affected too because for a long time I didn’t grow; I was only like 155, 158 centimeters tall until I was eighteen. I look very young even though I just turned twenty-one.

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